TubieTalk: Summer Trips + Tips for Tubies
Summertime is officially around the corner, and it is important TUBIE prepared! The warm weather and change in routine during summer can present unique challenges. It is important to ensure an adequate supply of formula, feeding tubes, syringes, and other necessary equipment for the duration of the trip. Planning for the storage and transportation of formula and keeping it at the appropriate temperature is vital. Additionally, having a contingency plan in case of emergencies, such as carrying extra supplies and knowing where to locate medical facilities at the destination, can provide peace of mind. By taking these proactive measures, individuals who tube feed or their caregivers can enjoy their summertime trips with confidence, knowing that their nutritional needs are met, and potential disruptions are minimized. Below, read Tubie Tips and favorite Tubie Trip destinations from our friends within the tube feeding community!
Favorite Summertime Tubie Trips
“'I’m going to gran canaria with my 18 months old soon first time as well concern with bringing all her feeding tubes and adapters in our suitcase 🙈 that and all her feeding formula....yay(!)” -Sarah
“We love the beach!”-Sarah
“I’m off to Paris in August, it will be my first trip abroad with a tube!”- Emily
Top Summertime Tubie Tips
“Traveling with his tubie blends frozen in breastmilk bags works best for us! You can prep a bunch beforehand and thaw as you need them.”- Shelby
Considering a Camping Trip?
Check out these TUBE-Tastic Tips from one of our Tubies, Anna M.!
Planning a camping trip, whether by yourself or with friends and family, is a fun and memorable summer idea. As a Tubie yourself or a parent/caregiver of a Tubie, it is important to plan and prepare to administer feeds at a camping site, in a RV, or in a tent. TubieTalk is excited to share first-hand advice from a member of the Tubie community, Anna M. Check out Anna’s advice for tube feeding while at a camping site:
Bring lots of bottled water (for hand washing)
Bring sterile water (for flushes etc.)
Bring surface disinfectant wipes and hand sanitizer
Bring a pack of baby wipes for cleaning tube stomas
Bring lots of extra supplies just in case
Bring a cool box for feed if needed
BONUS TIP: “We sleep in a 3-person tent, despite only being the two of us, so that we have plenty of space to store my medical stuff as well as clothes.”- Anna M.
**NOTE: THIS INFORMATION SHOULD NOT BE USED IN PLACE OF THE ADVICE AND DIRECTION OF YOUR DOCTOR.
Considering Taking Flight with a Tubie?
Check out these TUBIE Tips for Flying with a Feeding Tube from one of our Tubie Community Blended Dieticians!
“Take your time with planning because being thorough at this step will ensure you are prepared, and your trip will go smoothly. It’s like the carpenter's rule “measure twice, cut once”. You don’t want to be halfway through your trip and realize you didn’t bring enough supplies. Maybe that’s not the best analogy but hopefully you get my point – plan, plan, plan. If you’re thinking of travelling, start with talking to your healthcare team.”
To read more information on flying with a feeding tube click HERE.
Traveling with a feeding tube during summertime may require some additional preparation, but it should never hinder you from enjoying the wonders of the season. By considering factors like equipment supply, formula storage, and emergency plans, you can embark on your summer adventures with confidence and peace of mind. Embrace the warmth, explore new destinations, and create beautiful memories, knowing that your feeding tube won't hold you back!